Sue lives in Walpole with her husband, Joe, and is a mom to three children: Matthew, Daniel, and Caitlin. At the age of 1, Caitlin was diagnosed with mitochondrial disease and at the age of 5, with Rett Syndrome. Caitlin spent a great deal of time at Boston Children’s, both inpatient and outpatient, and received excellent care from the Gastroenterology, Epilepsy, Complex Care, Palliative Care, Neurology, Nephrology, Orthopedics, Endocrine, Home Parenteral Nutrition, and the C.A.P.E team. Sadly, Caitlin passed away in March 2020. Sue and Joe remain deeply grateful to all of the doctors and nurses at Boston Children’s who cared for Caitlin for so many years.

Sue is particularly passionate about projects which aim to help children with complex medical needs both inpatient and at home. In many ways, Sue pioneered a hospital-at-home model for Caitlin, doing the research and advocacy work so that Caitlin’s needs were met and so that Caitlin was able to live as normal a life as possible at home with her family. Sue hopes to use her knowledge and experience to help other families in similar situations.